Fairfield County Walk to End Lupus Now is This Sunday!

On Sunday, November 2, the Lupus Foundation of America, Connecticut Chapter will be holding our 5th annual Fairfield County Walk to End Lupus Now at the Westfield Trumbull mall in Trumbull, Connecticut. Pre-walk activities and registration begins at 8am while the walk itself begins at 9. Same day registration is available, however online registration is encouraged and available until October 31 at midnight.

??????????????????????The Fairfield County Walk to End Lupus Now will be full of family fun and other activities in addition to the walk; we will be providing food and water, a magician, a DJ and a moon bounce. The Fairfield County Walk to End Lupus Now is the last walk of the 2014 season for the Lupus Foundation of America, Connecticut Chapter. Participating in the Walk to End Lupus Now is a great way to spend your Sunday morning supporting an excellent cause and joining the Lupus Foundation of America, Connecticut Chapter in raising awareness and helping solve the cruel mystery!

The Westfield Trumbull mall is located at 5065 Main Street in Trumbull, Connecticut. The walk will be located inside the mall at the JC Penney entrance.

For online registration, please visit: http://www.lupus.org/connecticut/events/entry/fairfield-county-walk-to-end-lupus-now1

You are what you Eat: Eat Healthy

With Columbus Day behind us and Halloween just around the corner, autumn seems to be flying by. With a decrease in temperature and an increase in holidays, memories and traditional recipes, keeping a healthy diet can grow difficult. Whether you crave Grandma’s pumpkin pie or are guilty of dousing every corner of your plate in gravy, the holidays seem to be full of fats, sodium and sugar. Not exactly the healthiest combination when you’re battling a chronic disease. However, with a few adjustments, most of your favorite dishes can be designed to be both tasty and healthy.

blog.famousfootwear.com           The key to healthy cooking is keeping a close eye on ingredients. Many holiday staples begin with nutritious items; sweet potatoes contain antioxidants and essential vitamins and minerals to fight inflammation. By adding butter, sugar and marshmallows, it quickly becomes a fattening dish.

An easy way to monitor your fat, sodium and sugar intake during the holidays would be to make subtle changes in your recipes. Reduce sugar, fats and salt by one-third, or replace sugar with vanilla to maintain sweetness. It’s also important to choose lean proteins such as leg and loin cuts of beef, pork and lamb and use fresh ingredients instead of high-in-sodium canned goods whenever possible. Most importantly, don’t forget to fill your plate up with high fiber vegetables such as dark, leafy greens or anything from the cabbage family.

For more information on altering recipes, please visit:

http://fcs.tamu.edu/food_and_nutrition/pdf/altering-recipes.pdf

For excellent recipes to try at home, check out:

http://www.lupusny.org/about-lupus/life-without-lupus-recipe-collection

and

http://www.sodiumgirl.com/

The Empire State Building Lights Purple for an Evening of Hope

On Wednesday, October 8, at Gotham Hall in New York City, patients, researchers, care givers, supporters and celebrities gathered for the Lupus Foundation of Ame10409637_10152306843971044_6530663645821670618_nrica’s Evening of Hope National Gala. In addition to raising funds to aid the LFA mission and its broad programs dedicated to ending the brutal impact of lupus, the evening promoted advocacy and awareness. Earlier on Wednesday, Julian Lennon, the Global Ambassador of the Lupus Foundation of America, flipped the switch to illuminate the Empire State Building tower lights purple! Not only was the purple in honor of the Gala that evening, but to call attention to the need for increased awareness and investment in lupus research.

“The Empire State Building shining purple for lupus awareness is a beacon of hope for the millions of people around the world affected by this disease. We know that with greater awareness, comes greater support for lupus research,” said Julian Lennon, Lupus Foundation of America Global Ambassador.

At the Evening of Hope National Gala, Maurissa Tancharoen Whedon and Jed Whedon, the co-creators and executive producers of Marvel’s Agents of S.H.I.E.L.D., were honored with the Barlin Family Awa10672102_10152306270616044_1700562234088002456_nrd for their ongoing support and efforts to increase public awareness of lupus and the lives that it affects. Additionally, Prof. Dr. Iris Loew-Friedrich, Executive Vice President, Biopharma Development Solutions & Chief Medical Officer, UCB received the Corporate Leadership Award for the company’s innovative research in the development of new treatments for lupus and their commitment to improving the quality of life for those living with the chronic disease.

Notable Gala guests include, Whoopi Goldberg, recording artist and Season 5 winner of NBC’s The Voice, Tessanne Chin and ABC Family’s Pretty Little Liars’ Ian Harding. Photos of the evening and a video of Julian Lennon flipping the switch is in the links below.

The following day, Thursday October 9, entertainer Nick Cannon spoke with Evening of Hope National Gala guest, Whoopi Goldberg on The View regarding lupus and his health overall. The link for the full interview is listed below.

Evening of Hope National Gala:

http://www.lupus.org/general-news/entry/new-york-city-lights-up-for-lupus-awareness

The View: Nick Cannon, Whoopi Goldberg

http://www.lupus.org/blog/entry/the-view-nick-cannon-and-whoopi-goldberg

West Haven Walk to End Lupus Now: We’ve Almost Reached Our Goal!

Autumn is in full swing! Typical October behavior mandates carving pumpkins, picking apples and crunching through leaves, however, we at the Lupus Foundation of America, Connecticut Chapter are busy with walk season. We haFeatured imageve been counting down the days until our Fairfield County Walk to End Lupus Now on November 2 in the Westfield Trumbull Mall and our Huffing Off Stuffing 5k on November 30.

Additionally, we successfully hosted our West Haven Walk to End Lupus Now on September 14 at Savin Rock Beach. Walkers fundraised over $26,000, getting us so close to reaching our goal of $30,000. Remember: any donations for the West Haven Walk to End Lupus Now will be accepted through October 15. Don’t forget to submit any last minute online donations and help us reach our goal!

At our West Haven Walk we were fortunate enough to receive support from Walgreens, Sugar Cupcake Truck, Rita’s Italian Ice, The Meat Truck, and Lifetime: Care at Home in addition to numerous volunteers. Not to mention, our LFACT Jail n’ Bail, Locked Up For Lupus, was a huge success! Walkers and volunteers loved locking up family members, friends and loved ones to support the Lupus Foundation of America, Connecticut Chapter.

For those interested in attending our Fairfield County Walk to End Lupus Now or our Huffing Off Stuffing 5k, can refer to our events page for more information: http://www.lupus.org/connecticut/events.

Only 26 more days until our Fairfield County Walk to End Lupus Now! Are you ready?!

Positive Attitude, Positive Mind

A lupus diagnosis can cause both physical and mental strains. Not only does lupus affect you, but it also affects your loved ones. While managing such a serious disease, it is extremely important to keep a positive attitude. Do not let lupus ruin the beautiful person you are. You can control the emotional effects of lupus instead of letting the disease control you.

Keeping your mind occupied helps you maintain positivity. If interested in physical activity, ask your doctor or physician for suggestions. If your doctor permits exercise, it is important to remember to stick to a low-impact exercise regimen as to not irritate joints or cause a flare up. Additionally, pay attention to how your body reacts to physical activities. Some movements can be painful when you have swollen joints or muscle pain. Again, consult with your doctor or physician for suggestions or cautions regarding low-impact exercises before beginning.

When managing lupus, try your best to avoid stress. A common side effect with lupus is memory loss which could potentially fluster your stress levels. According to “Lupus International”, establishing a daily routine should eliminate stress. Making a list of other activities or goals to be accomplished that day can also be helpful. For many people, the ability to cross items off of a to-do list is very rewarding.

These are just a few suggestions on ways to keep a positive attitude during your fight. Always remember, with a positive attitude comes a positive mind.

Have you Heard the News?

Recently the Lupus Foundation of America, Connecticut Chapter Awardwas awarded the Bright Idea Leadership Award for our documentary “40 Years, 40 lives.” The documentary was released earlier this year, and follows the lives of people who are living with lupus in the state of Connecticut.

Lupus Foundation of America, Connecticut Chapter, was awarded this at the recent annual meeting held in Washington DC. This meeting is for all of the LFA chapters to come together and talk about where they have been and what the future will bring for their individual chapter.

If you have not seen the “40 Years, 40 Lives” documentary, click the link below to check it out!

http://www.lupus.org/connecticut/news/entry/check-out-our-40-years-40-lives-documentary

 

Five Themes of Lupus that can Help Doctor’s with Patient Care

Many people who have to deal with lupus often find themselves having the same experiences that others are having with the disease. The autoimmune disease often interferes with people’s lifestyles and causes them to not be able to live their life to full potential.

Recently, Doctor Allison Tong of the University of Sydney in Australia and her associates put the responses of about 1,400 people from 46 different studies into five concepts. These concepts and themes can help doctors deal with patient care and help them to improve the level of care and treatment outcomes.

The following five reoccurring themes were found in Dr. Tong’s study:

1. restricted lifestyle

2. disrupted identity

3. societal stigma and indifference

4. gaining resilience

5. treatment adherence

Doctor’s can use these five themes to develop and expand patient care to make it more centralized.

Each of the themes that Dr. Tong discovered has similar common experiences or perspectives of people living with lupus. People with the disease experiencing a restricted lifestyle had an interference with their mood and daily activities. This was caused by: pervasive pain, debilitating fatigue, mental disorientation, disruptive symptoms that develop over time, and having to postpone pregnancy due to anxiety over the risks of complications. People who experienced the disrupted identity factor had uncertainty and an emotional burden of dealing with lupus. The factors of this theme are: challenges of obtaining a clear diagnosis, uncertainty of their future and progressiveness of the disease, feelings of being a burden to family and friends, hopelessness, heightened self-consciousness due to appearance changes, fear of rejection, and guilt or belief that illness is punishment for an unhealthy lifestyle. People who experienced the societal stigma and indifference theme developed this when others trivialized the illness and when they were socially ostracized. They also experienced this theme when they were overprotected or intruded on by family members.

Two themes showed positive affects. Gaining resilience was obtained when patients accepted their disease and developed positive attitudes when dealing with lupus. They accepted lupus and coped with their new reality when they were diagnosed. Emotional and physical support given by family, friend, and doctors also helped them to accept the disease and live a normal life. Patients felt more in control and empowered when they were actively engaged in their lupus treatment. Being involved with lupus is an integral part of dealing with the disease because it allows you to see how other deal with the disease and gives a mutual understanding of others experiences with lupus. Treatment adherence was also a positive theme. People’s health improved when they believed that their medication was helping their disease and was having a positive impact on their health. Getting along with doctors and trusting them also helped treatment adherence. Staying on medications was a factor when patients did not think they were working, or went off of them for financial reasons.

Overall, People’s education, psychosocial (offering social and emotional support), and self-care programs helped to improve mental resilience of adults with lupus. It did this by developing better methods of coping with the disease. These factors will help people with lupus achieve better treatment and obtain the best quality of life.