The U.S. Senate Labor-Health and Human Services Appropriations subcommittee has released encouraging news for people who are affected by the cruel mystery of lupus. The committee, which is chaired by longtime lupus research and advocacy
supporter, Senator Tom Harkin (D-IA), released the details of its 2015 spending bill.
The specifics of the bill include:
- $5.6 million for the National Lupus Patient Registry Program at Centers for Disease Control and Prevention (CDC).
- $2 million for the lupus initiative at the Office of Minority Health
- $30.46 billion for the National Institutes of Health (NIH). This is a $605.7 million increase from the previous amount allocated to the National Institute of Health!
The Lupus Foundation of America’s advocacy efforts are a part of its strategy to elevate funding amounts for research and education involving lupus. The United States Federal Government is an integral part in helping the foundation raise funds to provide services to people who are fighting the cruel mystery of lupus. Without advocates like Senator Tom Harkin, LFA would not be able to make lupus widely known to the public. Funding for Lupus Foundation of America programs would not be possible.
The appropriations process for the 2015 fiscal year begins on the first day of October later this year, but It is currently stalled most likely due to the pending outcome of the November mid-term elections. The Lupus Foundation of America is committed to ensuring funds for lupus are possible. LFA is vigilant in efforts to make sure these funds are received. It is important to the Lupus Foundation of America that lupus is well represented in the United States Congress so the foundation can further work to make lupus recognizable and frequently noticed in the public.
When Congress resumes their session this fall after they return from summer recess, check back to see how you can help with the Lupus Foundation of America’s efforts. Get engaged in the fight to ensure lupus receives a fair amount of attention, funding and support from the federal government.
About Lupus Advocate Senator Tom Harkin
Senator Tom Harkin was born in Cummings, Iowa on November 19, 1939. He still resides in the small Iowa town of only 373 residents. He lives in Cummings with his wife Ruth. They have two daughters named Amy and Jenny, as well as three grandchildren.
Senator Harkin was just given a special tribute by the Lupus Foundation of America on May 20, 2014, in Washington, D.C. The tribute benefited LFA and highlighted the extraordinary leadership and contributions that Senator Harkin has made in the advancement of science and medicine in support of the National Institute of Health (NIH) and Centers for Disease Control and Prevention (CDC). He also does work for other key federal government agencies that are an integral part in the fight to support medical research for chronic diseases.
Harkin’s Notable Legislature Achievements:
- Senator Harkin helped change the landscape of America through the Americans with Disabilities Act (ADA). This act instituted the requirement of buildings and transportation systems to be wheelchair accessible. It also required workplaces to provide accommodations for people with disabilities.
- Senator Harkin also helped with getting funding for the National Lupus Patient Registry under direction of the Centers for Disease Control and Prevention. This study has received an estimated $32 million in funding and will reveal the burden of the disease on individuals and families affected by it. It also will provide a more accurate estimate of how many people are living with lupus in the United States.