Join The MAYhem!

2015 May Awareness Campaign

May is Lupus Awareness Month and we’re calling on YOU to join us in raising lupus awareness. Are you unsure of how to raise awareness? Well have no fear, we have numerous events occurring throughout the month of May designed to advocate lupus awareness and push us closer to our mission of finding a cause and cure for lupus. If you couldn’t attend any of our events you can still raise awareness by talking to friends and family about lupus and educating those around you.

 World Lupus Day – May 10th

During World Lupus Day individuals all over the world pledged to devote May 10th to raising lupus awareness and educating others about this cruel disease.

 Put On Purple Day (POP) – May 15th

On May 15th we encouraged our friends, family, co-workers, etc. to rock the color purple to show their support for lupus awareness. Everyone was encouraged to snap stylish/fun/silly pics of themselves wearing purple and share them on social media using the hashtag #PutOnPurple.

 Walk to End Lupus Now: West Hartford – May 17th

May 17th was our foundation’s signature event of the season, our Walk to End Lupus Now: West Hartford! Walkers joined the LFACT team for a half-day of food, fun, friendship, activities, and exercise as they strolled the ¼ – 3 mile route through the fabulous West Hartford Blue Back Square. Walkers showed their support for lupus warriors everywhere by joining in on the festivities while enjoying a beautiful spring day.

You can still donate to our walk by visiting our fundraising page to help us reach our overall goal. Any and all donations are greatly appreciated.

Thank-you for your generosity.

lupus_awareness_month

Don’t Forget To Register For The Walk

Everyone get excited – we are only 10 days away from our annual Walk To End Lupus Now in West Hartford! If you have not already registered, do so ASAP — you only have until May 14th. Don’t know where to register? Click here and you’ll be directed straight to the page. If you would also like to donate, you have until June 24th.

A quick recap of the event details:

Where: Blueback Square Town Hall Parking Lot, West Hartford CT

When: Sunday May 17th from 9 a.m. to 12 p.m.

Check-in Time: 9 to 10 a.m.

Registration Cut-off: May 14th (12 p.m.)

Donation Cut-off: June 24th (12 p.m.)

We are very excited for the Walk & look forward to seeing you all there! :)

??????????????????????

A Great Day At The Capitol!

On May 5th, our chapter went to the Capitol Building in Hartford for Advocacy Day, an annual event where we aim to raise awareness about the cruel mystery known as lupus.

It was an honor to have the support of CT Sen. Tony Hwang (R-28) & CT Reps. Brenda Kupchick (R-132) and Laura Devlin (R-134) while we were at the Capitol. The legislators presented our chapter with a proclamation from Gov. Malloy, which recognized the work that our chapter does in Connecticut, as well as helped us celebrate May being Lupus Awareness Month.

Corrianne Gagliardi, our Director of Development and Communications, said, “I am delighted to see the outpouring of support from our elected officials today for our state advocacy day.” We want to inform and raise as much awareness as we can about lupus, and are truly grateful for the support that the legislators showed us yesterday! Rep. Devlin, one of the House Representative Ambassadors for our organization, said it best when saying, “Lupus is a very serious disease affecting many people in Connecticut, some who do not even know it yet. I am glad to see that the State House feels that this is a worthwhile cause to support and looks to encourage awareness.”

Thank you again to Senator Hwang, Reps. Kupchick and Devlin, and everyone else who came out yesterday to support our organization at advocacy day.

11203261_10152721215701044_7768737456396364496_n

Come To West Hartford Rita’s Tomorrow, May 7th

We are one day away from our fundraiser at the West Hartford Rita’s & want to see you there! Why? Because a percentage of the sales made at the event will be donated to LFACT, which will help us in our ongoing efforts to raise lupus awareness. We will be scooping there from 5 to 8 p.m. tomorrow night (May 7th), so come and get an Italian ice, frozen custard or any of their other sweet treats. Invite everyone you know so we can make this night a great success!

Address: 1134 New Britain Ave., West Hartford CT 06110

1157372429871321273

Lupus Advocacy Day at the State Capitol

Would you like the opportunity to inform our state legislature about what it is like to live with lupus? You can — tomorrow (May 5th) from 10 a.m. to 12 p.m. at the State Capitol Building in Hartford! It is important to spread awareness and knowledge about the cruel mystery, so this is your chance to advocate for yourself and all of those living with lupus.

The cost for Lupus Advocacy Day is free, but registration is required. Click here to sign-up. If you have any questions, contact us at office@lupusct.org or 860.269.6240.

@mx_476

Happy Lupus Awareness Month!

Research has shown that about two-thirds of the public know little or nothing about lupus. Let’s change this — and what better time to start than on the first day of May, which just happens to be the first day of lupus awareness month!

The key to raising awareness about a disease such as lupus is by educating yourself and encouraging others to do so as well. How can you do this? Throughout May, there will be many activities taking place nationwide to help inform the public about lupus and the impact it has on people.

falrf-logo2

One way you can increase your knowledge about lupus is by playing the KNOW LUPUS Card Game. Play it yourself & challenge your friends and family to do so too. Not only will this game boost your knowledge about lupus, but each time you complete a level, the National Board Chair’s family will make a donation to lupus research! You can also click here to learn more facts. Share them on your social media to spread the word.

Check out this Awareness Toolkit & find everything you’ll need to help start raising lupus awareness this month. This toolkit includes Facebook & Twitter tools, lupus fact sheets, fliers and more — get started today!

Two important dates to keep in mind: World Lupus Day on May 10th & Put On Purple Day on May 15th. World Lupus Day is celebrated in honor of the more than 5 million people living with lupus worldwide. Put On Purple Day is exactly what it sounds like — on the 15th, put on your best purple gear to raise awareness and show support for those affected by lupus. You can click here to submit your photos, as well as look at the ones everyone else has sent in.

Make May your month to take action and spread awareness about lupus!

11143395_10152669144011044_981927610818409550_n

Have You Registered For The West Hartford Walk?

It’s finally May, which means our West Hartford Walk To End Lupus Now is only a few weeks away! Have you signed-up for the walk yet? We want to see all of your smiling faces there, so go ahead and join a team, create your own team or walk as an individual. You can click here to register — keep in mind that you only have until May 14th, so the sooner you sign-up, the better!

Donations: any donation, small or large, helps put us one step closer to solving the cruel mystery of lupus. The cutoff is June 24th, and you can click here to make a donation. If you’re on a team, share the link to your donation page on Facebook, Twitter and wherever else you can to get the word out! Every donation makes a difference.

If you have any further questions, contact our office at 860.269.6240 or office@lupusct.org . We look forward to seeing you all there on the 17th! :)

@mx_476-1