Coping With Lupus Fog

493x335_lupus_brain_fog_videoDid you know that 60% of lupus patients experience some type of memory problem? Whether it’s an inability to help their children finish their math homework, missing items on the grocery list, or misplacing things, dates, names, and events, “Lupus Fog” is often responsible.

“Lupus Fog” is the forgetfulness or fuzzy-headed feeling that is often associated with Systemic Lupus Erythematosus or SLE and can often be considered one of the most frustrating symptoms of the illness. However, lupus fog is often misunderstood. It does not strictly pertain to memory problems. It also refers to cognitive difficulties. Lupus fog can affect your concentration, cause memory problems, confusion, and difficulty expressing yourself. These symptoms, like many, often worsen with flares.

Although managing lupus can be extremely difficult, there are tricks and tips that can help you cope with your lupus fog!

Write Things Down. Instead of trying to retain information in your head (and failing), write down what you need to remember! Or download a good note taking app that can be accessed on your phone and your computer.

Stay Organized. Keep a daily planner so your notes aren’t on random scraps of paper. Consult the planner regularly throughout the day. Create a schedule or a manageable to-do list (even if it’s just one specific goal) for every day.

Prioritize. Divide your tasks into two separate categories: things you need to do now and things you can do later. Then solely do the things you need to do now.

Say it Out Loud. Things seem to stay with us in the short-term memory if you speak them aloud. When you meet someone new, use their name in the conversation a few times. After meetings at work, go over the main points aloud- it helps solidify your memory and others can fill in things you might have missed.

Sharpen Your Memory. Play word games and do crossword puzzles. It’s a fun way to stretch your memory!

Take Care of Yourself. If you have lupus, you need to respect your body. Reducing stress, getting enough sleep at night, regular exercise, and taking naps throughout the day can alleviate lupus fog symptoms.

Don’t Battle it Alone. Your physician and other experts can teach you ways to work around the cognitive symptoms.

When managing your lupus fog it is critical that you be open with your family and friends and be honest with yourself. If your lupus fog symptoms are mild, you may not have to alter your routine much. However, if your lupus fog is severe or long-lasting, you may have to take necessary steps to change your life and career.

Back to School With Lupus: For the Parent

It can be hard enough as a parent finding the time and energy to send your child off to school every day. For lupus patients, this challenge is even greater.

Last week on the blog we discussed helping your child with lupus transition back into the school year. However, what if it’s not the child who has lupus, but the parent? If you are a parent with lupus getting ready to send your kids back to school make sure you’re prepared. Here are some tips to help you lower stress and stay healthy this school year.

Make your health a priority

Listen to your body and do what’s best for you. Move at your own pace and be willing to say no. You may feel guilty putting your health first, but if you don’t you will end up wearing yourself out making you more susceptible to a lupus flare.

Tell your family how you’re feeling

Communication with your family is key with lupus, especially when one day can be great and the next not so great. Let everyone know exactly how you are feeling each day. A number scale is a good way to express the discomfort and pain you may be having. This can help your family understand better and adjust expectations accordingly.

Stay organized

Help prevent unwanted stress by staying organized! Check out some tips on the blog at  and be sure to take a look at our “Organizational Tips” Pinterest board,

Ask for help

Don’t be afraid to seek out help when you need it! Get into a routine of having scheduled help come throughout the week. This will help lower your stress and give you some rest time if needed so that you stay healthy! Ask family members to watch the kids or hire a neighborhood teen to be a mother’s helper after school!

For more information on parenting with lupus visit

LFACT Thanks You!

The Lupus Foundation of America, Connecticut Chapter, would like to thank all who joined us last week for two of our summer profit shares at Friendly’s and TGI Fridays! We could not make the impact that we do on our community without the continuous support and dedication from all of you! Together, we can all help to solve the cruel mystery of lupus; thank you!

Save the date and stay tuned for…

MOOYAH Fundraiser

Thursday, September 24th

772 N Main Street, West Hartford

LFACT is on AmazonSmile!

Did you know there’s a new way to support LFACT? The Lupus Foundation of America, Connecticut Chapter, is now on AmazonSmile. AmazonSmile is the same great Amazon that we all love, except with an extra perk! When you shop through the AmazonSmile site, you have the option to select the Connecticut Lupus Foundation Inc.  When you select us as your charitable organization, Amazon will donate 0.5% of the price of your eligible AmazonSmile purchases directly to LFACT!

Here’s a helpful tip: Once you choose the Connecticut Lupus Foundation Inc as your charity of choice on AmazonSmile, you don’t have to choose it again! AmazonSmile will keep donating as you continue to shop

Keep LFACT in mind the next time you shop!

To shop on AmazonSmile visit,  and search “Connecticut Lupus Foundation Inc.”. Select us and start shopping!

For more information on AmazonSmile visit,


Back to School With Lupus: For the Student

Of the 1.5 million people in the United States diagnosed with lupus, 20% of those affected with the disease are children and adolescents. If your child is heading back to school with lupus, make sure you’re both prepared.With treatment, a healthy lifestyle and the necessary support, children with lupus are able to attend school with no problem. Here are some ways to help ease your child’s transition into the school year and prevent lupus from defining them!

Address any insecurities

Many children with chronic diseases like lupus just wish to be able to lead a ‘normal’ life like all their friends. Due to this, a main concern of children with lupus is that they will no longer be able to participate in activities with their friends. They may feel different and isolated from the rest of the group. Additionally, they may feel helpless or burdened by their disease.

These insecurities can be addressed by listening to your child and seeking professional help if necessary. Let them know that there is always someone available to talk to whenever they may need it. It is also important to educate yourself, your child, as well as family and friends so that everyone is well aware of the disease. The mentality that “we are all in this together” is a positive note that can help your child feel like they’re not alone.


For anyone with lupus, especially a child, support from family, friends, organizations, and school is extremely important. Look into support groups for children with lupus as well as make sure they have a doctor you are both comfortable talking with. It is also important to have frequent communication between you and your child’s school and other organizations.

For more resources to help your child with lupus head back to school visit, “15 Questions- Back to School with Lupus” at


TGI Friday’s FAQ

Join the Connecticut Chapter tomorrow, August 20th, at TGI Friday’s in Newington for our fourth profit share of the summer! From 4pm to 12am come on out for a night of food and fun with LFACT! Meet your coworkers for appetizers and drinks or treat the whole family to dinner. Present the flyer below to your server and 20% of the proceeds from your meal will benefit the Lupus Foundation of America, Connecticut Chapter! Come support your local chapter and celebrate the end of the summer with friends and family! We can’t wait to see you there!

Have some questions before the event? Hopefully these answers help!

Where is the event?

The fundraiser will be held at TGI Friday’s in Newington.

3025 Berlin Turnpike

Newington, CT 06111

How do I donate?

Download the flyer at

Present this flyer to your server and 20% of the proceeds from your meal will benefit the Lupus Foundation of America, Connecticut Chapter!

Do I need to spend a certain amount?

Nope, whatever you purchase whether it’s just drinks or dinner for the family, 20% of the proceeds from your meal will benefit the Connecticut Chapter!

Help us solve the cruel mystery of lupus! We can’t wait to see you there!

benefit night

Time to Get Organized!

Are you ready to go back to school? The start of another school year always brings new organizational challenges. For lupus patients, this challenge can be even greater due to the symptoms lupus brings. The term “lupus fog” is one that is familiar to many patients. The phrase reflects the difficulty that patients may have in completing once-familiar tasks such as remembering names and dates, keeping appointments, balancing your checkbook or processing thoughts. In order to stay on top of tasks this school year it is important stay organized! Make sure you and your family is ready with these helpful and creative tips to make the transition back to school as smooth as possible!

Organize your entry way
With the amount of traffic going in and out of your house this fall, make sure you can find everything you need without having to dig around a mess!

  • Make sure you have a designated spot for keys like a kekeysy rack or dish.
  • Create a phone charging station. Power off and place your phone there at night that way you’re never left with a low battery in the morning!
  • Place a hook for each family member on the wall to hold backpacks, purses, coats, charging
  • Organize hats, mittens, scarves, etc. by having individual storage bins for each family member.
  • Invest in a shoe rack to avoid looking for that second sneaker every morning!
  • Hang a dry erase calendar so everyone knows the plans for the day!

Save important school papers

Avoid important school papers getting thrown out or crumpled up in the bottom of your kids backpacks. Create a folder for each child and save anything they bring home with them throughout the year. Keeping it all in one place will help to avoid last minute panic!file papers

Plan meals for the week
It can be easy to order takeout when you’re stressed and on the go, however not only is it expensive, but very unhealthy. It is important for lupus patients as well as their families to maintain a well-balanced diet.

  • Keep a dry erase board in the kitchen to write down items you run out of throughout the week.
  • Print out healthy recipes before you shop so that you know exactly what ingredients you need for the week.

For quick and healthy dinner ideas visit the blog at

Additional organizational tips can be found on our Pinterest board at