As you might know the Lupus Foundation of America had more than 250 activists on Capitol Hill on June 25th. We presented a petition with over 30,000 signatures to congress urging them to support lupus research funding and Nation Institute of Health (NIH) funding.
Well! On July 11th, 2013 the Senate Appropriations Committee approved a draft of the 2014 fiscal year Labor-Health and Human Services-Education appropriations bill. If this passes then the NIH could see a funding increase of up to $31 billion an increase of $307 million. This bill would also include $2 million to continue the national health education program on lupus for healthcare providers and $4.43 million to the National Lupus Patient Registry at the CDC which would go toward more cohort and burden of illness studies as well as filling gaps in the registry project.
This is great to hear and we give our thanks to all those who signed the petition and all the activists who made their way to capital hill to let them know this was what we wanted. It’s great to hear that lupus has supporters on Capitol Hill working to ensure that this cruel mystery will one day be solved!
If you’d like to read more you can check out The Lupus Foundation of America’s story here.